Developmentally Disabled Community Honors Trailblazing Women Behind Crucial AZ Funding Bill

The Arizona Legislature and Governor Katie Hobbs have reached a crucial agreement to avert a funding crisis at the Division of Developmental Disabilities (DDD). This decision, finalized last week, has sparked celebration among the developmentally disabled community, lawmakers, and advocates who tirelessly fought for essential services.

The legislature approved an allocation of $122 million in supplemental funding intended to sustain DDD through the end of the fiscal year. This resolution followed months of conflict between the Republican-controlled legislature and the Democratic governor over proposed budget cuts and additional oversight of the Parents as Paid Caregivers program, which significantly contributed to the financial shortfall.

Brandi Coon, co-founder of the Raising Voices Coalition and mother of a child who depends on DDD services, shared her personal journey during the ceremonial bill signing. Coon recounted facing rejections from a young age, igniting her resolve to advocate for critical programs. “This isn’t just a win — it’s a revolution built on true love and determination,” she stated, crediting the collective efforts of caregivers and advocates across the state.

Thirteen-year-old Grace Haley expressed gratitude to representatives Julie Willoughby and Nancy Gutierrez for their bipartisan collaboration, which preserved vital services for her brother, Jacob. Haley’s commitment included participation in protests and ongoing communication with lawmakers, emphasizing the importance of advocacy. “You both made me feel like my voice matters,” she declared.

Jason Snead, a DDD service recipient, acknowledged the community’s relentless support in urging lawmakers to secure funding before a May 1 deadline. “They allow me to be a better father, husband, and employee,” he remarked about the services he benefits from, while also warning of future challenges ahead.

With the immediate crisis averted, attention now shifts to the upcoming budget for the next fiscal year. The deliberations could reignite debates regarding funding levels for DDD services. Additionally, concerns loom over potential Medicaid cuts proposed by congressional Republicans, which could severely impact coverage for millions and complicate budget discussions for state officials.

Hobbs highlighted the uncertainty of state resources if federal funding is curtailed, emphasizing the need for ongoing vigilance from the developmental disability community. The pathway ahead remains fraught with challenges, but the collective determination exhibited sets a powerful precedent for future advocacy.